Meet Zoe Adams
Meet Zoe Adams

Zoe Adams is a 6 year old girl from Edgewater, FL who was diagnosed with Sanfilippo Syndrome.

Meet Zoe Adams
Meet Zoe Adams

"Sanfilippo is a progressive and fatal disease that affects only 1 in 70,000 children, according to the Cure Sanfilippo Foundation. The foundation describes it as progressive dementia, similar to Alzheimer’s, that regresses all things a child has learned, until the child dies, usually in their teenage years"(Allison Shirk).

Meet Zoe Adams
Meet Zoe Adams

Zoe looks at his father, J.J., while sitting next to her mother, Kim, in their home in Edgewater, FL on Friday, May 12, 2017.

Meet Zoe Adams
Meet Zoe Adams

"Zoe used to be able to feed herself and speak in full sentences, but now she shouts one word at a time, like 'mommy'"(Allison Shirk).

Meet Zoe Adams
Meet Zoe Adams

"She’ll pretty much fade away from us,” JJ said. “It’s robbed us. She won’t be able to go with her mom to the salon or pick out prom dresses. I won’t get to walk her down the aisle. In blatant terms, it really sucks.”

Meet Zoe Adams
Meet Zoe Adams

"She’ll pretty much fade away from us,” JJ said. “It’s robbed us. She won’t be able to go with her mom to the salon or pick out prom dresses. I won’t get to walk her down the aisle. In blatant terms, it really sucks.”

Meet Zoe Adams
Meet Zoe Adams

J.J. and Kim laugh together next to Zoe as Zen, their 8-year-old son, explores how my cell phone works in a case to make video in their living room.

Meet Zoe Adams
Meet Zoe Adams

“He looks out for her,” JJ said about Zoe's 8-year-old brother. “He is being the big brother until the end.”

Meet Zoe Adams
Meet Zoe Adams

“He looks out for her,” JJ said about Zoe's 8-year-old brother. “He is being the big brother until the end.”

Meet Zoe Adams
Meet Zoe Adams

“He looks out for her,” JJ said about Zoe's 8-year-old brother. “He is being the big brother until the end.”

Meet Zoe Adams
Meet Zoe Adams
Meet Zoe Adams
Meet Zoe Adams
Meet Zoe Adams
Meet Zoe Adams
Meet Zoe Adams
Meet Zoe Adams
Meet Zoe Adams
Meet Zoe Adams
Meet Zoe Adams

Zoe Adams is a 6 year old girl from Edgewater, FL who was diagnosed with Sanfilippo Syndrome.

Meet Zoe Adams

"Sanfilippo is a progressive and fatal disease that affects only 1 in 70,000 children, according to the Cure Sanfilippo Foundation. The foundation describes it as progressive dementia, similar to Alzheimer’s, that regresses all things a child has learned, until the child dies, usually in their teenage years"(Allison Shirk).

Meet Zoe Adams

Zoe looks at his father, J.J., while sitting next to her mother, Kim, in their home in Edgewater, FL on Friday, May 12, 2017.

Meet Zoe Adams

"Zoe used to be able to feed herself and speak in full sentences, but now she shouts one word at a time, like 'mommy'"(Allison Shirk).

Meet Zoe Adams

"She’ll pretty much fade away from us,” JJ said. “It’s robbed us. She won’t be able to go with her mom to the salon or pick out prom dresses. I won’t get to walk her down the aisle. In blatant terms, it really sucks.”

Meet Zoe Adams

"She’ll pretty much fade away from us,” JJ said. “It’s robbed us. She won’t be able to go with her mom to the salon or pick out prom dresses. I won’t get to walk her down the aisle. In blatant terms, it really sucks.”

Meet Zoe Adams

J.J. and Kim laugh together next to Zoe as Zen, their 8-year-old son, explores how my cell phone works in a case to make video in their living room.

Meet Zoe Adams

“He looks out for her,” JJ said about Zoe's 8-year-old brother. “He is being the big brother until the end.”

Meet Zoe Adams

“He looks out for her,” JJ said about Zoe's 8-year-old brother. “He is being the big brother until the end.”

Meet Zoe Adams

“He looks out for her,” JJ said about Zoe's 8-year-old brother. “He is being the big brother until the end.”

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